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#Usher syndrome coalition software
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When you visit our website you may provide us with two types of information: personal information you knowingly choose to disclose that is collected on an individual basis and website use information collected on an aggregate basis as you and others browse our website. In 2015, the Usher Syndrome Coalition, an organization of individuals and families working to build the global USH community and speed the search for a cure, declared the third Saturday in September as our global “Usher Syndrome Awareness Day.” This day falls near the autumnal equinox in the northern hemisphere, marking the start of days that contain more darkness than light - a powerful metaphor for the threat of Usher syndrome. There are three clinical types of Usher syndrome: Type 1 usually causes profound deafness at birth, vestibular (balance) dysfunction and progressive vision loss Type 2 usually causes moderate to severe hearing loss at birth and progressive vision loss Type 3 usually causes later onset progressive hearing loss and progressive vision loss. It is estimated to affect at least 25,000 people in the United States and over 400,000 worldwide. Usher syndrome (USH) is a rare inherited condition - passing from parents to children - that impacts three major senses in the body: vision, hearing and balance. By raising awareness around the world, we connect those living with Usher syndrome and accelerate research towards treatments and a cure. Usher Syndrome Awareness Day seeks to bring attention to the most common genetic cause of combined deafness and blindness. The third Saturday in September is Usher Syndrome Awareness Day, Celebrating our Growing Global Community
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